Hospital passports contain information that can make a real, tangible difference to clinical assessments and disease management, including the things that HCPs often don’t know they should ask, and that patients and families may forget to offer.
Professor Ryan writes with authority, vulnerability and humour. This book made me smile, nod in recognition and, at times, cry. We need to do better and Professor Ryan not only explains why, but also gives us tools to start on the “how”.
A small bit of knowledge about Autistic Spectrum Condition (ASC) can make a huge difference in how an emergency situation evolves. If you have no knowledge of ASC you will approach this scenario as an ordinary call and walk into chaos.
Terminology is important, not only for making sure we understand a child's diagnosis properly, but also for providing the best possible care. Getting it right can also help gain the trust of parents and carers who will often know far more about appropriate language use than we clinicians.